Palliative Care in Congenital Syndrome of the Zika virus associated with hospitalization and emergency consultation

• DOI: 10.22533/at.ed.46419200818

• Palavras-chave: Atena

• Keywords: Microcephaly; Zika virus; Palliative care; Hospitalization.

• Abstract:

  Background: Congenital

  syndrome of zika virus (CSZV) is associated

  with neuromotor and cognitive developmental

  disorders, limiting the independence and

  autonomy of affected children and high

  susceptibility to complications, so palliative

  care needs to be discussed and applied. Aim:

  Identify factors associated with emergency

  visits and hospitalizations of patients with CSZV

  and clinical interventions performed from the

  perspective of palliative care. Design: Crosssectional

  study with bidirectional longitudinal

  component. Data were collected between

  May and October 2017 through the review of

  medical records and interviews with relatives

  of patients hospitalized. Setting/Participants:

  Developed in a tertiary care hospital involving

  patients with confirmed CSZV born as of August

  2015 and followed up until October 2017.

  Patients under investigation were excluded.

  Results: 145 patients were followed up at the

  specialized outpatient clinic and 92 (63.5%)

  were consulted at least once in the emergency

  room, 49% already had been hospitalized,

  the main reason being neurological causes,

  while 24.1% had never require any emergency

  visit or hospitalization. No risk factors were

  associated with the occurrence of consultations

  or hospitalizations. Such events happened

  at an early age and were accompanied by

  a high number of invasive procedures and

  interventions. An approach in palliative care

  was only identified in two hospitalized patients.

  Conclusions: For the patient with known severe

  malformations caused by congenital infection by

  the zika virus with indication of palliative care,

  this approach could be used in order to allow life

  without suffering and disproportionate invasive

  method.

• Número de páginas: 15