PERCEPÇÃO DE PORTADORES DA DOENÇA FALCIFORME ACERCA DOS SERVIÇOS DE SAÚDE: ANÁLISE SOB O OLHAR DAS POLÍTICAS PÚBLICAS
PERCEPÇÃO DE PORTADORES DA DOENÇA FALCIFORME ACERCA DOS SERVIÇOS DE SAÚDE: ANÁLISE SOB O OLHAR DAS POLÍTICAS PÚBLICAS
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DOI: https://doi.org/10.22533/at.ed.81781126020110
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Palavras-chave: Anemia Falciforme; Políticas Públicas; Serviços de Saúde; Acesso aos Serviços de Saúde; Saúde Pública.
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Keywords: Sickle Cell Anemia; Public Policies; Health Services; Access to Health Services; Public Health.
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Abstract: Introduction: Sickle cell anemia is one of the most prevalent hereditary diseases globally and a public health challenge in Brazil. Although policies addressing the condition exist, the fragmentation of studies hinders a comprehensive understanding of their effectiveness, justifying the need to synthesize the available scientific evidence. Objective: To analyze how public policies have been configured to ensure access to and quality of health services for people with sickle cell anemia. Method: This is an integrative review, with searches conducted between April and June 2024 in the LILACS, MEDLINE/PubMed, and SciELO databases, using the descriptors "Anemia, Sickle Cell," "Public Policy," "Health Policy," "Health Services," and "Health Services Accessibility." The selection followed the PRISMA recommendations, including original articles in Portuguese and English, with data extraction and analysis using the PICO strategy. Results: Policy formulation is insufficient without effective and coordinated implementation. Variability in program implementation, insufficient legal frameworks in some contexts, and the fragility of quality surveillance and monitoring systems are identified as the main obstacles. The lack of health education strategies for patients and families also emerges as a flaw that compromises self-care and adherence to treatment. Conclusion: It is concluded that the role of public policies in guaranteeing health services for people with sickle cell anemia is ambiguous: powerful in formulation, but fragile in implementation. The existence of a legal framework and clinical guidelines has not been sufficient to overcome the disarticulation of the service network and structural inequalities, resulting in care that rarely achieves the recommended comprehensiveness.
- MARIA AUGUSTA SIMÕES OLIVEIRA
- Mariana Santos de Sá Galina
- Jordana Cansian Fioreze
- Alan Patricio da Silva